Welcome to Everyone Around the World who has an interest in Lewy Body Dementia.
Maybe you know of this disease by another name: Parkinson Disease Dementia, Dementia with Lewy Bodies, or Diffuse Lewy Body Dementia. If you are confused about the strange mannerisms with LBD, I was as well. We were told that my husband had Parkinson’s, but no! It was definitely LBD. I was his caregiver/physical therapist for five years and have worked with several families since. I have a fairly good handle on the disease.
Books
This webpage will provide many Doors for the seeker who wants more information. I researched all symptoms, and put our experience into a book: Living with Lewy Body Dementia, One Caregiver’s Personal, In-Depth Experience. You will find more information under the Door marked Books. All pages have a link for you to order the book easily.
I have hundreds of suggestions for all stages and phases of the disease. It is factual, but offers hope and optimism for ways to add as much quality to your lives as possible.
Should your spouse pass from LBD as my beloved husband did, I continued my adventure attitude by writing a book about widowhood: The Wonderful World of Widowhood…Except When It Isn’t. It has now been rewritten to reflect on my 15 years as a widow: The Wonderful Widowhood World If You Give Friendship With God a Try.
More information is available under the Door marked Book.
Mentoring
I have done the 24/7 journey with my husband. He could have days when he was able to walk all over the house, go out to restaurants, carry on great conversations; followed by days or hours when he was a complete invalid and couldn’t get out of bed. It is a bizarre disease. But we made the best of every day: went on three cruises in those five years, took several car vacations, and had notable story/moments that have touched people in many parts of the world.
I do mentor caregivers and widows who have either of my books and need to talk or connect: Leave your information under the Door called Contact me.
Blog
Under the Blog Door, I have posts on various topics. Some are cautions to prepare other caregivers for the “unexpecteds”. Others might be funny, contemplative or informative. The category marked Widowhood is a sharing of my journey to refind a new normal in my life. All posts are my gifts to other caregivers and widows. I hope they add hope and clarity.
Group Talks
If your interest is hearing my story personally, I do speak for large and small groups. Explaining the importance of understanding LBD and the differences from Parkinson and Alzheimer’s is very important. Contact me and we can organize a zoom call if you need to talk to me. Doing my book at a book club meeting is very valuable. It gives the readers ample time to comment or ask questions. This discussion format also works well with a zoom gathering.
YouTube
You can get a few snippets of my talks on YouTube under Judy Towne Jennings or Facebook.com/dementiacaregiver.
Teaching for Professionals
For Occupational Therapists, Physical Therapists, and Speech Pathologists. Dementia with Lewy bodies or Lewy body Dementia, What is the Difference? 4 CEU’s with Colibri.com
Thank you for your interest.
Judy Towne Jennings, PT, M.A. Special Education
